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Kathy Bienapfl (kbienapfl)


November 2, 2007


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kbienapfl


Minneapolis, Minnesota


Anal Cancer


Squamous Cell


July 2006


Stage 4


No


Lobectomy


yes


Taxol (chemical name: paclitaxel)


Cancer Survivor


The fear I see in the eyes of the people I love.


Appreciate and enjoy every day.


Lower back pain
Vaginal pressure
Low energy


June 2007; Lower right lung wedge resection


Pelvic radiation; July – September 2006
Side effects became so severe required hospitalization during final week of treatment.


Currently on taxol/carboplatin
Prior treatment of Folfox 6 showed no sign of lung met shrinkage.




kbienapfl's Cancer Blog

July 21, 2008

DetoursViews: 507

Typical Monday morning conversation; So…what did you do this weekend? My response would be ‘I tried to control the pain that has been continuing to build. On Saturday, Dick and I ran errands. I should restate that. Dick ran errands. I sat in the passenger seat and watched him run in and out of stores. Saturday night I found myself very restless and without sleep. The pain that I had been experiencing in my rib area turned into spasms. Add to that the gastrointestinal problems I am experiencing from the pain meds I had been taking…I had a ‘trying’ weekend’.

When one lacks sleep it is difficult to think straight. Many things run through a worn and weary brain. My thought process concluded that I was experiencing liver or kidney problems, as the pain I have been experiencing is in that area. All I know is I was very uncomfortable. Sunday morning greeted Dick with me in tears and asking that he take me to the emergency room.

The emergency room decided a CT scan was in order. The results came back with what appears to be erosion of the bone between ribs 9 and 10 on my right side. Bone mets. It has been confirmed with me that erosion of bone is uncomfortable and painful. It’s nice to know I’m not a wimp.

From the emergency room I have been admitted into my very familiar room at Fairview Southdale. Room 819 is going to be known as my signature room. I am going to start decorating it and adding my own personal touches to it soon. Funny…but not so much. It’s a private room. That is always appreciated.

Right now the focus is to get my pain under control using various forms of morphine. We are also working on getting my intestinal disturbances under control. From there discussions will be taking place with regards to a treatment plan regarding my rib area. The word ‘radiation’ was thrown into the conversation yesterday. Ugh! As the next few days unfold the plan will become clearer. Right now we are dealing with the three P’s….pain, poop and plan.

It’s been a difficult twenty-four hours. I feel as if the wind has been knocked out of our sails. We had been living with such high hopes as we felt the Vitamin C infusions were assisting me in turning the corner. I’m not ending that part of this fight…just taking a bit of a detour.

Oh Kathy, I am so….sorry that you continue to go through more than any person should have to go through. Just know that I faithfully uplift you in healing prayer each day. My prayers also include Dick and your children. Shalom, Lily

Kathy – It was great to see your face pop up in the most recently updated posts, but I am sad to hear about how much pain you are in. Oh how I wish I could help out. Just know I am thinking of you and sending you some healthy vibes your way.

Kathy Just wanted to let you know you and your family are always in my prayers and 3 Churches are
praying for you and yours. Hugs.

Dear Kathy; It is with great amazement that you are able to be so honest about your pain to us all and we are forever grateful that this site allows you to do this kind of venting. I did not know you were taking Vitamin by injection and I just saw a queereie from Gemma about that very thing. Maybe if you have a chance you might want to address that with her and your feelings about that therapy. This is not a nice time for you and your family as it means you have to reorganize your thoughts and plans which is always tiring and difficult. Let us hope that there is a good treatment pain plan for you as this is the one thing that is so important for your mental health and stability. Prayers are always good and I offer them to you too. However it is always the Dr.’s that seem to have the immediate possible answers for the pain process. You have been very courageous and it sounds as if you are still in there fighting your way through the massive and complicated life of a cancer patient. We love you and hope that your strength follows you wherever you go.
Weezie

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Kbienapfl's Stats

Posts: 35
Photos: 4
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Comments: 146
Views: 29767



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