kbienapfl
kbienapfl's Cancer Blog
June 23, 2008
| Guinea Pig Updates | Views: 713 |
Last week was a rather long and grueling week. I apologize for not updating and letting you know how the trial has been going.
Where to begin…where to begin….
First, I will begin by thanking all of you for the prayers that have provided this amazing opportunity. As the days have passed, I am learning more and more how fortunate I am to be involved in this trial. There are many, many people requesting to be a test subject. Fortunately for me, unfortunately for others, the criteria is very strict and CTCA must be very selective when accepting their candidates.
The first week of the trial was rather grueling, which helps me understand why they are so selective. Candidates must be healthy (well, as healthy as you can be with Stage IV cancer!) Having gone through my cleanse and clearing the toxins out of my body has assisted me greatly with my energy levels.
My days begin at 5:45 a.m. to get to CTCA by 7:30 a.m., as the commute is about 45 minutes. The first thing we do upon my arrival is vitals, urine and blood tests. They are required to test my kidney’s, liver and other blood levels. Once that is approved…the infusion is a go! The infusion generally starts at about 10:00 a.m.
During the infusion, my vitals are checked every 15 minutes, including constant monitoring of an EKG machine that sends signals to the intensive care unit via satellite. I have been keeping ICU very busy, as we have learned through this that I am bradycardia (http://en.wikipedia.org/wiki/Bradycardia). Evidently monitors are going off in that department as if I am code blue many times throughout the day.
So…the infusion begins. After a bit of time thirst begins. Along with a 1500cc IV bag, I am drinking about a gallon of water during a 2 hour period. I don’t need to tell you what happens when the body is saturated with fluids. So, before I know it, I am signaling to my nurse that I need privacy for a the portable potty, as I am not able to move too far from my bed, as I am hooked up to monitors. Urinating every fifteen minutes gets very old.
Last week the days were very long. Monday I was in the center from 7:30 a.m. until about 5:00 the next day….constant monitoring and very little sleep. Thursday required that I have several blood tests, at various intervals, the last being 11:00 p.m. That had me settling in my bed at Basia’s at about 12:30 a.m. I don’t know about you…but for me, that’s a very long day!
Earlier in the week, Dick and I decided I needed to fly home for the weekend. I arrived in Minneapolis at about 4:30 p.m. Friday afternoon. When I saw my bedroom, I dived for the bed and stayed there until about 9:00 a.m. There is nothing like your own bed!
This week and next will be a bit less intense. My days will last until about 2:00 p.m. and then I will free to do as I wish.
There is really not much else for updates. Boring…I know. The big results will come at the end of the 4th week. Dick and I plan to spend that weekend in Chicago. We have a hotel booked on Michigan Avenue with the plan to celebrate and rejoice in good news.
The most difficult part of this journey has been being away from Dick and Eileen (and Bert). Vacations are one thing. Being away under these circumstances, one finds themselves in need of comfort, hugs and familiar surroundings.
Thank you so much for your continued prayers and support. You are all my hero’s!
09.13.08 - 
Chris and Jaime 
Brian Aagaard 
Thanks for your support -
Just wanted to jump in and say hi,
I was able to watch the inter-view with
Montel Willams that you did. I was so impressed on
how you presented your self a long with your family.I feel that Family is the key to getting through this time in your life.
I am so proud of you and love you much!
Your Blog Sister Sherri