kbienapfl's Cancer Blog

June 17, 2008

Inquiries Answered

Views: 792

Hello All,

Thank you for your continued prayers and support. You are all amazing and wonderful co-fighters!

I had not posted in a bit of time. You are probably confused as to what has been going on since my last ‘Disappointment’ post.

If you would like to go to my regular blog, you will find that I have moved on from my unfortunate news in April. http://kathybienapfl.blogspot.com/ Can’t keep a good girl down!

I thought I would answer your inquiries. It seems this study has piqued some interest.

I came upon the Phase I trial by searching various cancer treatment centers two weeks ago. After reviewing the criteria for this specific study, I sent an email and received a response shortly thereafter. It was a flurry of activity two weeks ago, as they received, reviewed and accepted me within days.

The study itself is free. Fortunately, CTCA is in the town I was raised in, which means I have friends and family near by. Because of that, I have received gracious offers to have me stay with them, as lodging, car rental and incidentals are not covered in the study. I drove down from Minnesota, so I am able to use my own car and I do not have to deal with car rental. Breakfast and lunch is provided by CTCA as you are under their care during those hours.

My insurance company is not involved, as this is an FDA approved trial. The only time my insurance would be billed would be for pre-existing care items, i.e.; diabetes supplies, etc. if I required those.

The program is a four week program. I am free to do as I please after vitals on Friday mornings. The study does not involve weekend time.

The people at CTCA are great! Truly caring and empathetic people. I do not have very much interaction with the regular staff, as I am working with the research team in their own little corner of the world.

If you have further question, please do not hesitate to ask.

My prayers and good thoughts to all of you.

Posted on June 17, 2008 at 6:24:07 AM by Kathy Bienapfl ( Inquiries Answered, 0 comments)